Me Omw To Block All The Zionists On Jumblr

Me omw to block all the zionists on Jumblr

Important Post Please don't scroll

My name is Morgan; I am chronically ill and queer while also living in a small conservative town. I am also without a car. There's only a handful of clinics in this town and I've had repeatedly bad experiences with them due to my chronic illness and being queer. I am unable to get the help I need from them and from the fact the doctors who could help me are in a city I have no way to get to. I need a car.

Please consider checking out my gofundme so I can finally get one and get the help I need.

Even the smallest donation would help.

At least reblog if you can.

the way a lot of y’all on this site hear “autism” and automatically assume whoever is speaking means “low support needs autism” is really weird and ableist. sorry it just is

"I support my neurospicy friends!" people when they meet someone who's autistic in a way that strongly impacts their social functioning instead of just being quirky and awkward

sentences of all time

i have a disability. more specifically, i have a rare genetic condition called camurati-engelmann’s disease, or CED. it is also known as progressive diaphyseal dysplasia (PDD). it is an extremely rare disorder and only around 300 cases have been reported worldwide.

i figured i would make a post talking about it, in an effort to not only educate others, but to possibly connect with others who suffer from it as well. i apologize for the longer post but please this moment to learn about my disorder.

CED is a skeletal condition that is characterized by abnormally thick bones (hyperostosis) in the arms, legs and skull. the overgrowth in bone causes bone pain, muscle weakness and extreme fatigue. the pain feels like an electric stabbing pain, an ever-increasing pressure sensation around the bones affected, or a constant aching. pain can also occur in joints and they will often lock-up, becoming immobile and stiff. the pain is especially severe during 'flare-ups', which can be unpredictable, exhausting and last anywhere from a few hours to several weeks. this is a common occurrence for us, often causing extensive sleep deprivation from the chronic, severe and disabling pain. when this happens, we are often bedridden or housebound for days or even weeks.

those affected also have an unsteady walk and limp. thickening of the skull can also lead to neurological problems, like hearing loss, vision issues, vertigo and tinnitus. symptoms vary in severity from person to person. there are treatments, however it cannot be cured. pain management is a large aspect of living with this chronic disease.

there is very little awareness and research for CED. rare diseases are severely neglected and overlooked, as are those who suffer and live with them. research is often not considered profitable due to their cost to develop and the limited patient population. major federal funding agencies give preference to research that is likely to have a direct impact on patients.

living with a rare disease is extremely difficult and isolating. it impacts the lives of millions of us and our loved ones worldwide. those of us suffering from rare medical conditions should be entitled to the same quality of treatment as other patients. i am disabled, but i am worth it.