Disabled Queer - Tumblr Posts
I intend to donate my wheelchair because I've found alternative ways to manage my pain, and my current chair is not suited for me personally. But I'm worried that if I need it, I won't have it. And since I'm donating it, if I wanted to get another chair I'd have to pay out of pocket since the Ontario support programs are incredibly choosey and lengthy.
In conclusion... ooooouuuugh
Spoke to a rheumatologist today. Got another blood test done. I feel like I'm in a cycle.
I just had two appointments back to back and both of them referred me to somewhere else.
The rage of the disabled is never ending.
throws the medical system into the fucking sun. Ok I'm fine
If I get referred to one more doctor with no results, I'll freak. The stress alone is making my pain worse
I can't even begin to explain the pain I am in. My pelvis and knees are killing me, even though I took my medication.
I thought it was making progress but it just seems like things are going downhill again.
So much of being a disabled person looking for the limited support we have is waiting.
My spring semester starts tomorrow, and I only got an email two days ago about accessible seating. The email states it will take up to two weeks to process. Why on earth am I only being allowed to "ask" for accessible seating when I won't even get it in time?
I'm in a fortune situation with my health right now where I use a cane to walk, instead of my rollator, but if my health declines again, I can't just WAIT to get the support I need.
Ever since I was a little girl I knew I wanted to be fundamentally ostracized from general society on account of my disabilities
In the midst of all the ableism in the world, the casual allyship of offering someone a seat will always be important to me
It can get very snowy where I live and the sidewalks aren't often salted, which results in myself and other disabled people with mobility issues barely being able to fucking get anywhere. I nearly slipped & ate shit at least three times on a 10 minute walk to my medical clinic. Salt the sidewalks in front of your residence.
Trying to be a uni student while disabled is like pulling teeth. Even with a reduced course load, I can't even manage to go to my classes on Fridays because I'm just completely wiped out. The majority of it is because I'm in fucking pain all the time and I can't focus
When I say that the medical system is failing me, your response shouldn't be "Google your symptoms" or "Only you can help yourself" because neither of those things are remotely helpful. Instead, treat those failed with by the system with empathy and get fucking mad over the injustice.
the urge to constantly wear noise cancelling gear and never hear any loud noises ever please :)
My back hurts from sitting, and my legs hurt from standing. And I didn't get a call back about my x-ray *jumps into the sun*
Good news: calf muscles r growing back!
Bad news: ow
the world of disability is often one of absolute loneliness and destroying sadness. this loneliness and sadness is not from the hands of the disabled, but rather the abled. we, as the disabled, blur the lines of their understandings of joy, experience, and self -- they cannot imagine being disabled and the struggle accompanied with it until they become disabled themselves, as they all will. in the meantime, we must find meaning and joy within our communities because it is difficult to find belonging elsewhere.
Chronic pain is so ridiculous because I can do a little jog to catch the streetcar at 12pm and still be in pain about it 9 hours later
Chronic pain is so ridiculous because I can do a little jog to catch the streetcar at 12pm and still be in pain about it 9 hours later
In honour of it being around 1 year since my health declined and I became physically disabled, I wanted to share my recent calls which is a great summary of my life (alt text available)
Who was I before my disability? Was I happier? When I look at photos of myself, am I only my disability? When I look in the mirror, who do I see?
There is a lot of loss with the formation or the realization of disability. Loss of opportunity, resources, friendships, sense of self. All of this loss is tactical, of course, by the institutions that constantly try to shove disabled people out of their spaces, and intentional by society to isolate disabled people.
The lack of support, solidarity, allyship, results in the loss of self. When we are seen only for our disability, that is all we see in ourselves. All we see is that loss.
However, disability isn't all loss. It's painful and, more often than not, it sucks. But we cannot allow ourselves to define our disability as solely loss. There is more than that.
It's just a matter of finding it.