Spoonie - Tumblr Posts - Page 2
It can get very snowy where I live and the sidewalks aren't often salted, which results in myself and other disabled people with mobility issues barely being able to fucking get anywhere. I nearly slipped & ate shit at least three times on a 10 minute walk to my medical clinic. Salt the sidewalks in front of your residence.
Trying to be a uni student while disabled is like pulling teeth. Even with a reduced course load, I can't even manage to go to my classes on Fridays because I'm just completely wiped out. The majority of it is because I'm in fucking pain all the time and I can't focus
When I say that the medical system is failing me, your response shouldn't be "Google your symptoms" or "Only you can help yourself" because neither of those things are remotely helpful. Instead, treat those failed with by the system with empathy and get fucking mad over the injustice.
the urge to constantly wear noise cancelling gear and never hear any loud noises ever please :)
My back hurts from sitting, and my legs hurt from standing. And I didn't get a call back about my x-ray *jumps into the sun*
Good news: calf muscles r growing back!
Bad news: ow
the world of disability is often one of absolute loneliness and destroying sadness. this loneliness and sadness is not from the hands of the disabled, but rather the abled. we, as the disabled, blur the lines of their understandings of joy, experience, and self -- they cannot imagine being disabled and the struggle accompanied with it until they become disabled themselves, as they all will. in the meantime, we must find meaning and joy within our communities because it is difficult to find belonging elsewhere.
Chronic pain is so ridiculous because I can do a little jog to catch the streetcar at 12pm and still be in pain about it 9 hours later
Chronic pain is so ridiculous because I can do a little jog to catch the streetcar at 12pm and still be in pain about it 9 hours later
In honour of it being around 1 year since my health declined and I became physically disabled, I wanted to share my recent calls which is a great summary of my life (alt text available)
After about 16 months of constant pain, I finally got a diagnosis. Turns out, I have long COVID. The nurse said the symptoms overlap with fibro, so I've been put on an anti-inflammitory.
I don't know what I expected, but it wasn't this. Experimental drug trials are the only other medical options I have.
Time to start wearing a mask again.
I know that grooming two dogs a day doesn't seem like a lot but it definitely is when you're ✨ chronically fatigued. ✨
Hey guys. As you probably know, I was recently diagnosed with Dysautonomia (IST, VVS, potentially also POTS).
I've been stuck in bed for 10 months, struggling with severe orthostatic intolerance. I can't sit up at all without puking or fainting, and doctors don't seem to know how to help me.
I keep having to go to appointments, pay for tests and buy random medical shit to try and figure out what's going on. Since I live off just $400 a fortnight from Centerlink, basically every bill is a cost I can't afford.
For just $1 I'll sketch whatever you want, and it'll help me pay my medical bills and be able to sit up again 👇
ABSOLUTELY NO PRESSURE TO TIP IF YOU CAN'T. I have a roof over my head and I'm not gonna die- but it'd help me out greatly if you have the cash to spare!
I just wanna be able to paint again :")
My medical expenses hit $1000 today 😬
I really truly appreciate everyone who's tipped me so far. Thank you, seriously.
I hate to continue to post about this, but my savings are very quickly draining and I have even more spenny appointments coming up, so I could really use the help.
Even just sharing my link around would be amazing. Thank you.
able bodied allies of disabled people when your disability genuinely has no secret upside and makes you useless to a late stage capitalist society
My knee wants to put up a fight with me today, like, I still need to work?