Writing Disability - Tumblr Posts

1 year ago

Writing and drawing amputee characters: Not every amputee wears prosthetics (and that's ok)

Not every amputee wears prosthetics, and not doing so is not a sign that they've "given up".

It's a bit of a trope that I've noticed that when an amputee, leg amputees in particular, don't wear prosthetics in media its often used as a sign that they've given up hope/stopped trying/ are depressed etc. If/when they start feeling better, they'll start wearing their prosthetics again, usually accompanied by triumphant or inspiring music (if it's a movie). The most famous example of this is in Forest Gump, Where Dan spends most of the movie after loosing his legs wishing he'd died instead. He does eventually come around, and him finally moving from his wheelchair to prosthetics is meant to highlight this.

A GIF of people partying. A white man with long, curly black hair sitting at the bar is only just visible: lieutenant dan sitting in his wheelchair while everyone around him is sitting on stools or dancing. Forest Gump, a white man with very short brown hair wearing a party hat leans over and says "Happy New year lieutenant Dan!". Dan looks off into the distance, clearly not having a good time.

The thing is, it's not that it's unrealistic - in fact my last major mental health spiral was started because one of my prosthetics was being a shit and wouldn't go on properly, despite fitting perfectly at the prosthetist's the day before. I'm not going to use my legs when I'm not in a good headspace, but the problem is, this is the only time non-prosthetic using amputees ever get representation: to show how sad they are. Even if that's not what the creator/writer necessarily intended, audiences will often make that assumption on their own unless you're very careful and intentional about how you frame it, because it's what existing media has taught them to expect.

But there are lots of reasons why someone might not use prosthetics:

they might not need them: this is more common in arm amputees because of how difficult it can be to use arm prosthetic, especially above-elbow prosthetics. Most folks learn how to get on without them pretty well. In fact, most of the arm amputees I know don't have prosthetics, or only have them for specific tasks (e.g. I knew a girl who had a prosthetic hand made specifically for rowing, but that's all she used it for).

Other mobility aids just work better for them: for me, I'm faster, more manoeuvrable and can be out for longer when I'm in my wheelchair than I ever could on my prosthetics. Youtube/tik tok creator Josh Sundquist has said the same thing about his crutches, he just feels better using them than his prosthetic. This isn't the case for everyone of course, but it is for some of us. Especially people with above-knee prosthetics, in my experience.

Other disabilities make them harder to use: Some people are unable to use prosthetics due to other disabilities, or even other amputations. Yeah, as it turns out, a lot of prosthetics are only really designed for single-limb amputees. While they're usable for multi-limb amps, they're much harder to use or they might not be able to access every feature. For example, the prosthetic knee I have has the ability to monitor the walk cycle of the other leg and match it as close as possible - but that only works if you have a full leg on the other side. Likewise, my nan didn't like using her prosthetic, as she had limited movement in her shoulders that meant she physically couldn't move her arms in the right way to get her leg on without help.

Prosthetics are expensive in some parts of the world: not everyone can afford a prosthetic. My left prosthetic costs around $5,000 Australian dollars, but my right one (the above knee) cost $125,000AUD. It's the most expensive thing I own that I only got because my country pays for medical equipment for disabled folks. Some places subsidise the cost, but paying 10% of $125,000 is still $12,500. Then in some places, if you don't have insurance, you have to pay for that all by yourself. Even with insurance you still have to pay some of it depending on your cover. Arm prosthetics are even more expensive. Sure, both arms and legs do have cheaper options available, but they're often extremely difficult to use. You get what you pay for.

they aren't suitable for every type of environment: Prosthetics can be finicky and modern ones can be kind of sensitive to the elements. My home town was in a coastal lowland - this means lots of beaches and lots of swamp filled with salty/brackish water. The metals used in prosthetics don't hold up well in those conditions, and so they would rust quicker, I needed to clean them more, I needed to empty sand out of my foot ALL THE TIME (there always seemed to be more. It was like a bag of holding but it was just sand). Some prosthetics can't get wet at all. There were a few amputees who moved to the area when I was older who just didn't bother lol. It wasn't worth the extra effort needed for the maintenance.

People have allergies to the prosthetic material: This is less of a problem in the modern day, but some people are allergic to the materials their prosthetics are made from. You can usually find an alternative but depending on the type of allergy, some people are allergic to the replacements too.

Some people just don't like them.

There's nothing wrong with choosing to go without a prosthetic. There's nothing wrong with deciding they aren't for you. It doesn't make you a failure or sad or anything else. Using or not using prosthetics is a completely morally neutral thing.

Please, if you're writing amputees, consider if a prosthetic really is the best mobility aid for your character and consider having your characters go without, or at least mix it up a bit.

For example, Xari, one of the main characters in my comic, uses prosthetics unsupported and with crutches, and uses a wheelchair. They alternate between them throughout the story.


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11 months ago

Writing Advice: Disability And Infantilization

Here Is Life Lesson To Take Into Everything: Disabled Adults Are Adults

In My Multi-Part Series, I Will Be Talking About The Different Ways That Writers Alike Mess Up This Phrase.

Disabled Adults Are Children?

This is a common mistake that authors make when attempting to write distabled characters. This is especially common when representing intellectually disabled characters but it definitely appears in the representations of the physically disabled.

Infantilization is a form of ableism where an individual talks/thinks/acts with a disabled person the way you might interact with an infantile child or dumb dog.

This type of infantilizing tends to impact those

If you want to understand how infantilization impacts real humans living in the real world and not characters, there are a ton of resources online and on Tumblr.

For disabled characters, love interests, allies, and the narrative itself relegate these characters to "funny animal sidekick" or "symbol of innocence".

I'm going to go through a rapid fire list of how authors infantilize and downplay how amazing their characters could be if you gave them something to do. Ok? Ok!

Never Giving Your Disabled Character Something To Do In The Story Besides Sitting There And Looking Innocent

Portraying Your Disabled Or Disabled-Coded(autism-coded) Character As Ignorant Or Unwanting Of "Adult Things" Like Sex, Problems, And Unhappiness

Assuming That Your Disabled Character Couldn't Do [THING] Despite Not Asking Mommy Google About It

Not Treating A Disabled Person's Desires, Beliefs, And Opinions Are Serious Which Often Leads To Characters Violating Their Boundaries

Having Your Likeable Characters Treat The Disabled Character Condescendingly Like Patting Their Head Or Acting Disapprovingly Shocked When A Character Goes Outside This

Refusing A Character's Ability To Be Independent By Having Them Only Rely On Others To Do Everything

When you, author, treat your intellectually/physically disabled character as a symbol of innocence or a child, you deny audiences the ability to see well-developed characters on screen! Disabled adults are adults who do things that adults do!

They drink if they want to

They have sex if they want to

They identify as [Something] if they want to

They date if they want to

They swear if they want to

They believe if they want to

Caretaker/Friend/Love Interest characters should not be romanticize when they disrespect this character, desexualize this character, and violate the boundaries of this character.

"When you deny the humanity of certain characters, you deny the humanity of certain people. "


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11 months ago

Writing Advice Part 2: Disability And EVIL

Disabled adults are adults and because they're adults they have a wide variety of morality and characters since humans are an exceedingly diverse group with even more diversed existences.

WRONG!

No. No. In reality:

👿👿DISABLED ADULTS ARE EVIL, ALL EVIL!!!!!!! 👿👿 According to certain writers!

When writers take communities and existences such as the facial difference gang or the intellectually disabled doers this results in horrific portrayals of "demonization". Obviously, people with physical disabilities are often portrayed horribly. I will mention them in the facial differences saga. The only reason I am specifically talking about facial differences and intellectual disability is because physical disability and facial differences tend to overlap while intellectual disability is a common yet undertalked form of representation.

Demonization: it's just like what it sounds like. Disablity always equals evil

However, the ways that facial differences gang is demonized is different to how intellectually disabled doers are demonized.

THIS BECAUSE OF A COMMON ASSOCIATION aka

Good = Beautiful/Handsome, Evil = Ugly

For future reference, when I say ugly I mean "not conventionally attractive" and when I say beautiful I mean "conventionally attractive". Afterall, Harvey Dent is attractive. That's a fact.

A popular example of this is the James Bond franchise which has stocks full of villainous characters with various limb differences, scars, and other such things. These ugly and bad characters fight against the cool and handsome James Bond

Literally, the association between evil and "ugly" is so ubiquitous that when a character becomes disabled they also become evil. The transition between being law-abiding handsome attorney Harvey Dent and evil insane "ugly" Two-Face is marked by fire/acid.

Let me tell you, there is no link between being a bad person and being not conventionally attractive. I'm not saying you can't write bad people with facial differences but they're not bad people because of their facial differences.

Secondly, Facial differences aren't only scars. They are often congenital. There are hundreds of different kinds of facial differences. This was just to talk about the fact that most people hear "facial difference" and think "scar".

FOR INTELLECTUALLY DISABLED DOERS, their evilness comes from their supposed "mental status as a six-year old". For the purposes of clarity, I am just going to say that's not how intellectual disability is labeled and move on.

Because of their supposed "mental status" 🤢, they have no ability to guage morality. They're " *derogatory term* who does evil out of ignorance"

Firstly, intellectually disabled people can learn things, like morality. Especially, if we are talking about the majority of intellectually disabled people who have to mild-to-moderate intellectual disability. Either way, there are hundreds of education prgrams designed to help people in learning about things from periods to childrearing to reading to everything necessary for life.

Secondly, intellectually disabled people aren't children. I talked about that in Part 1 named Writing Advice: Disability And Infantilization. Check it out, it's fun.

Thirdly, intellectually disabled people exist in the real world. If you want to write a character who is intellectually disabled, you can ask them for assistance. There is nothing stopping you.

CONCLUSION: No matter what disability someone has, that shouldn't stop them from being human. You can write disabled characters as evil but disabled characters should be evil not because of disability but regardless of disability. Evil Doesn't Equal Not Conventional.


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11 months ago

What Makes A Disabled Character "Good"?

A disabled character shouldn't be judged as a failure when they need caretakers and other reliances for the important stuff in life no matter their age

A disabled character shouldn't be mocked as weak or spoiled when they refuse to break their boundaries or be happy

A disabled character shouldn't be shamed when their medical problems impede on their sex capabilities or hygiene or anything else like that

A disabled character shouldn't be celebrated only when they do break the impossible odds since most characters never break the odds

A disabled character shouldn't be dehumanized when they act cheerful

A disabled character shouldn't be treated like a child when they aren't a child

A disabled character shouldn't be forced into leading an "idealic" life that wasn't built for individuals like them

A disabled character needs to be accepted by the author when they fail to thrive, to die, to succeed.

A disabled character needs to be created by an author who understands that life is complicated and that the things they think as "necessary" to leading a fulfilling life may not be in the cards for certain characters

A disabled character needs to be understood by the author as a disabled character who can't do everything an able-bodied character can do.

And when a disabled character is not fully independent, self-sufficient, and thriving, an author should know that even in these circumstances, fulfillment and joy can be found. Disabled people do it all the time.

Many people aren't breaking odds, being fearless activists, and thriving. They struggle. They break sometimes. They succeed sometimes. But in this life, they can find the ability to be content.


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11 months ago

Part 3 Writing Advice: Stop The Self-Hating Narrative Around Disability

I'm BACK! I was working on some other Tumblr posts but i've decided to fulfill my promise to talk about the common associations people seem to have between disability and self-hatred.

You remember my own slogan "Disabled Adults Are Adults", right?

Well, here is the slogan for the majority of writers who are bad at writing good disability representation "Disabled Adults Are Tragic :`(

This association comes into everything so we'll go from the small chunks of ableist LOOORE~ and then move onto the really big ticket items? Right!

Assistive Aids Are Traps Designed By The Illuminati!

What do these common literary phrases have in common?

Confined to a Wheelchair

Forced to Use a Cane

Cursed To Always Use [Assistive Aid]

The answer: they are exceedingly negatively charged which incorrectly imply that mobility aids such as wheelchairs are horrible fates to be falled upon! This implication that living with disability is such a curse tends to be most forced upon "understandable" villains and sympathetic "tragic" figures who are "unbearably cursed" with a horrid fate

Those phrases are horrible not just because they incorrect imply that devices such as wheelchairs and other mobility aids are curses when, in reality, the individuals who use these assistant aids desperately need them in order to exercise their full potential but also due to the fact that it's an able-bodied centric perspective!

People who actually use these devices don't see them as unbearable weights bringing them down but tools of freedom and autonomy. Obviously, independence is not necessary to lead a fulfilling life but it's a nice cherry on top!

This "able-bodied centric perspective" will come up again!

Curing Disability

At the end of the story i'll cute and sweet protagonist/main character will be forcibly mutilated into an able-bodied person either by machinery in a sci-fi setting or through the gods.

p.s that's just eugenics. eugenics is what the nazis did

Curing disability doesn't just mean a literal cure but also the overall narrative of "overcoming" disability tends to be here.

"Overcoming disability" is when an author implies that through a character's dedication they have "overcame" the limitations of their disability and are functionally no longer disabled.

Basically, if you have a disabled character whose jokes tend to center on "wow, I always forget you are disabled" or "I am the author and I keep forgetting this character has a disability", you have this trope.

The reason why this is shitty is because you, able-bodied author, have disabled readers. Disabled readers of various different types of disabilties who are reading your story.

Can you imagine if every single story of an able-bodied character involved them being forcibly turned disabled as a "reward" for their good behavior?

Can you imagine if every story involving a queer character involved that singular queer character being turned into a cishet individual?

"Disabled people still exist even when your character stops being disabled"

All you have done is tell disabled and non-disabled audience members that disabled people don't deserve to exist. That's bad.

Final: The Self-Hating Narrative

"Disabled Adults are Adults"

When I was inventing that phrase, I knew it needed to be universally applicable. The only reason I specificed "adults" and not "people" was due to the fact I was talking about infantilization in the first part and I didn't want someone to be like "well, obvi special needs kids are going to be treated delicately".

Anyway, the phrase needed to be universal because disabled adults are just people at the end of the day. They struggle with some not universal things like chronical illness or disability. They also struggle with the universal things like: can I support my family, am I ready, will the bank be closed by the time I wake up, can I be a good person?

They also succeed. Sometimes this success is in the form of gaining more mobility then before. Sometimes this success will seem minor to not disabled people or even to disabled people who have never struggled with that particular thing before.

They also succeed at things we succeed at. They create what has never been created before. They prove to themselves that they can be relied on. They laugh when they struggle.

Yes, they sometimes hate themselves. But even then, they continue on. They struggle with their symptoms day-to-day on top of succeeding in the daily struggles we all deal with. They deal with ableist remarks while also having fun.

Disability Is Normality

Many disabled adults and children are fighting for the right to see narratives in which their lives aren't plagued by melodramatic angst about being disabled.

Many disabled adults and children go about their daily lives with an overwhelming confidence about their disability and don't give a shit about what ableist remark you have to say.

And one of the most important things an author needs to be if they ever want to write true, inspiring, and universal works is to listen to voices of those they wish to represent.

If an author wants to represent disabled people living disabled lives in fantasy and reality, they need to listen to the perspectives of those who are actually living those lives. Sure, they may be lacking in terms of how to fly a dragon but humanity is humanity with or without the added uniqueness.

If an author just takes a ableist-covered crap-filled myths of what disability is like, expect backlash! Or maybe expect nothing, disabled adults have way too many concerns to be dealing with your sorry ass.


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11 months ago

Hi, make sure to interact with my post about donations! I personally can't do much in regards to donating and I know that some of you can't either. So if you could just take a couple of seconds to reblog some of the posts that would be amazing :)

What Makes A Disabled Character "Good"?

A disabled character shouldn't be judged as a failure when they need caretakers and other reliances for the important stuff in life no matter their age

A disabled character shouldn't be mocked as weak or spoiled when they refuse to break their boundaries or be happy

A disabled character shouldn't be shamed when their medical problems impede on their sex capabilities or hygiene or anything else like that

A disabled character shouldn't be celebrated only when they do break the impossible odds since most characters never break the odds

A disabled character shouldn't be dehumanized when they act cheerful

A disabled character shouldn't be treated like a child when they aren't a child

A disabled character shouldn't be forced into leading an "idealic" life that wasn't built for individuals like them

A disabled character needs to be accepted by the author when they fail to thrive, to die, to succeed.

A disabled character needs to be created by an author who understands that life is complicated and that the things they think as "necessary" to leading a fulfilling life may not be in the cards for certain characters

A disabled character needs to be understood by the author as a disabled character who can't do everything an able-bodied character can do.

And when a disabled character is not fully independent, self-sufficient, and thriving, an author should know that even in these circumstances, fulfillment and joy can be found. Disabled people do it all the time.

Many people aren't breaking odds, being fearless activists, and thriving. They struggle. They break sometimes. They succeed sometimes. But in this life, they can find the ability to be content.


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1 year ago

A general cane guide for writers and artists (from a cane user, writer, and artist!)

Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!

This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.

This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions in your writing, but you absolutely should continue to do your own research outside of this guide!

This is NOT a medical resource!!! And never tell a real person you think they're using a cane wrong!

[Image text] Arm bends a little. Cane height at hip joint. Many canes have adjustable height. Cane sits within the natural center of balance. Causes stress on: Triceps, upper back, wrist (pressure) fingers (grip). Helps with: Joints (lower back, hip, knee, ankle, foot), weakness, balance, pain.

The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!

A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.

Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height can make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)

(some people elect to use a cane wrong for their personal situation despite this, everyone is different!)

A General Cane Guide For Writers And Artists (from A Cane User, Writer, And Artist!)

(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)

When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane and the bad leg and follow with the good leg!

Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.

In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.

Now we come to a very common mistake I see... Using fashion canes for medical use!

[Image text] 4 Major Handle Shapes (significant variation and uses). Tourist/Crook/Hook. Classic shape, fashion and medical, easy to hook on things (arm, door, chair, etc), generally solid wood (stronger, heavier). Offset. Newer design, not a fashion handle, only handle for quad-bases, generally better balance, usually aluminum (light + cheap), soft handle, adjustable (rattles/clicks when swinging). Derby/Fritz/Anatomical/Contour. Classic medical shape, many fashion variants, some fashion + medical, varies in many ways, sometimes contoured to hand, comes in foldable styles, many aluminum styles, many customizable styles. Knob/Decorative. Fashion exclusive, knob shape hurts the hand after prolonged pressure (especially with designs), tend to be heavy, "sword canes" have the same issues.

(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)

The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!

Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.

The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!

This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!

However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.

[Image text] 4 Major base shapes (significant variation and uses). Adjustable base. Aluminum, standard modern medical, adjustable height, rubber base, wears down over time. Tripod/ quad base. If you need extra balance. Terrain attachment (varies, this is for ice). Removable, helps stop slipping on ice/snow/sand/etc, some canes have a retractable tip for ice. Classic base. Non-adjustable, custom only, modern standard still has a rubber base.

Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)

Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.

Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)

Two canes side by side. The one on the left is painted a light pink, and the one on the right is painted black with a fire/lava pattern.

(my canes, for reference)

If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!

When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!

For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.

[Image text] Where to put your stuff. Purses/bags. A lot of size range, Can mess with balance, Zippers are too hard with one hand, Handheld means you have no hands, over the shoulder only. Fanny pack. Accessible with one hand, Limited space, Good for balance. Backpack. Very physically comfortable, evenly weighted, holds a lot (medicine, foldable cane, emergency supplies, etc) can't access without fully stopping and putting cane down/hooking it on arm/dangling on strap. Pockets. Can only use on free side, many outfits don't have good pockets.

When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)

When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)

That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!

Happy disability pride month! Go forth and make more characters use canes!!!


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4 years ago

Resources For Writing Deaf, Mute, or Blind Characters

 Despite the fact that I am not deaf, mute, or blind myself, one of the most common questions I receive is how to portray characters with these disabilities in fiction.

As such, I’ve compiled the resources I’ve accumulated (from real life Deaf, mute, or blind people) into a handy masterlist.

Deaf Characters:

Deaf characters masterpost

Deaf dialogue thread

Dialogue with signing characters (also applies to mute characters.)

A Deaf author’s advice on deaf characters

Dialogue between Deaf characters

“The Month I Suddenly Went Deaf”

What It’s Like Going Deaf In Your Thirties

9 Women Share What It Feels Like To Lose Your Hearing

What It’s Like Being a Deaf Teenager (video)

Parenting With Sign Language (video)

Deaf Teen Talks About Losing His Hearing To Meningitis (video)

Things Not To Say To A Deaf Person (video)

Deaf Kids Shining in High School (video)

I recently discovered the youtube channel of the amazing Jessica Kellgren-Fozard, a vintage-loving, lesbian, happily married queen, who talks about her deafness in many of her videos.  I can’t recommend her enough.

Black Deaf Culture Through the Lens of Black Deaf History

Black Deaf History

Video: How to Sign in BASL (Black American Sign Language)

Mute Characters

Life as a Mute

My Silent Summer:  Life as a Mute

What It’s Like Being Mute

21 People Reveal What It’s Really Like To Be Mute

I am a 20 year old Mute, ask me anything at all!

Blind Characters:

Things Not To Say To A Blind Person (video)

What It’s Like to Go Blind (video)

The 33 Worst Mistakes Writers Make About Blind Characters.

@referenceforwriters masterpost of resources for writing/playing blind characters.

The youtube channel of the wonderful Tommy Edison, a man blind from birth with great insight into the depiction of blind people and their lives.

As does Molly Burke, “a typical sushi and makeup loving millennial girl who just so happens to be blind.”

And Alyssa Irene, who talks about her experience going blind and life as a blind person.

An Absolute Write thread on the depiction of blind characters, with lots of different viewpoints and some great tips.

And finally, this short, handy masterpost of resources for writing blind characters.

Characters Who Are Blind in One Eye

4 Ways Life Looks Shockingly Different With One Eye

Learning to Live With One Eye

Adapting to the Loss of an Eye

Adapting to Eye Loss and Monocular Vision

Monocular Depth Perception

Deaf-Blind Characters

What Is It Like To Be Deafblind?

Going Deaf and Blind in a City of Noise and Lights

Deaf and Blind by 30

Sarita is Blind, Deaf, and Employed (video)

Deaf and Blind:  Being Me (video)

Born Deaf and Blind, This Eritrean American Graduated Harvard Law School (video)

A Day of a Deaf Blind Person

Lesser Known Things About Being Deafblind

How the Deaf-Blind Communicate

Early Interactions With Children Who Are Deaf-Blind

Raising a DeafBlind Baby

If you have any more resources to add, let me know!  I’ll be adding to this post as I find more resources.

I hope this helps, and happy writing!  <3


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11 months ago

open question about writing pnes

i've been writing a fic for a while about a character having a psychogenic non-epileptic seizure due to being under a lot of stress (dan egan s3e7 special relationship iykyk) because i love to project onto characters :) i only have experience with non-epileptic seizures due to serotonin syndrome tho, and i've never had a psychogenic seizure. i've obviously done some reading but its not super easy to find tons and tons of info because its decently rare, so i am reaching out to the tumblr community :)

specific qs below the cut, tw emeto+brain damage

does vomiting happen during pnes seizures

is it possible to get cerebral hypoxia from not breathing during the seizure

is it even possible for it to be a one time thing due to severe stress

can you remember what happened during the seizure/around the time of it

after waking up is there disorientation and if so how bad + for how long

thank you!!!


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1 year ago

Saving this for later and for everyone who might see this. ;)

A general cane guide for writers and artists (from a cane user, writer, and artist!)

Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!

This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.

This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions, but you absolutely should continue to do your own research outside of this guide!

[Image text] Arm bends a little. Cane height at hip joint. Many canes have adjustable height. Cane sits within the natural center of balance. Causes stress on: Triceps, upper back, wrist (pressure) fingers (grip). Helps with: Joints (lower back, hip, knee, ankle, foot), weakness, balance, pain.

The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!

A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.

Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height will make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)

A General Cane Guide For Writers And Artists (from A Cane User, Writer, And Artist!)

(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)

When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane, then the good leg, and THEN the leg that needs help.

Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.

In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.

Now we come to a very common mistake I see... Using fashion canes for medical use!

[Image text] 4 Major Handle Shapes (significant variation and uses). Tourist/Crook/Hook. Classic shape, fashion and medical, easy to hook on things (arm, door, chair, etc), generally solid wood (stronger, heavier). Offset. Newer design, not a fashion handle, only handle for quad-bases, generally better balance, usually aluminum (light + cheap), soft handle, adjustable (rattles/clicks when swinging). Derby/Fritz/Anatomical/Contour. Classic medical shape, many fashion variants, some fashion + medical, varies in many ways, sometimes contoured to hand, comes in foldable styles, many aluminum styles, many customizable styles. Knob/Decorative. Fashion exclusive, knob shape hurts the hand after prolonged pressure (especially with designs), tend to be heavy, "sword canes" have the same issues.

(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)

The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!

Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.

The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!

This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!

However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.

[Image text] 4 Major base shapes (significant variation and uses). Adjustable base. Aluminum, standard modern medical, adjustable height, rubber base, wears down over time. Tripod/ quad base. If you need extra balance. Terrain attachment (varies, this is for ice). Removable, helps stop slipping on ice/snow/sand/etc, some canes have a retractable tip for ice. Classic base. Non-adjustable, custom only, modern standard still has a rubber base.

Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)

Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.

Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)

Two canes side by side. The one on the left is painted a light pink, and the one on the right is painted black with a fire/lava pattern.

(my canes, for reference)

If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!

When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!

For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.

A General Cane Guide For Writers And Artists (from A Cane User, Writer, And Artist!)

When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)

When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)

That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!

Happy disability pride month! Go forth and make more characters use canes!!!


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