Chronic Illness Vent - Tumblr Posts

loving people with chronic health conditions and there being nothing to do to help them SUCKS

i have chronic issues myself but when i break down it's mostly because the people i love are miserable

i am tired of seeing the people i care about suffer without being able to help

being chronically ill it's so difficult to not dismiss healthy people struggleing with a short time illness

like "i'm sorry you got a cough, i have to make big adjustments to my everyday life to not regularly faint" is not the answer i wanna give others

saying "oh you're tired cause you stayed up on tiktok for too long? i didn't sleep at all cause of how much pain i was in" isn't empathetic

it's just hard not to compare my suffering to others seemingly minor issues

i always need to remind myself that this isn't minor to them, no matter how i might feel about it... i refuse to loose my empathy in addition to everything else i have to limit

i think i keep forgetting my chronic illness won't just stop once i graduate... like i'll actually have to live with it in the future and i have to work with it

i've always seen my graduation as the final goal before having the freedom to decide what i want my life to look like and now that is being taken from me

i always forget... i guess despite all i am still secretely waiting for a magical cure

thinking about the time i fainted and after managing to get up with my friends help i walked up to my gym teacher telling him i gotta sit down and he refused to let me because "sitting down will make you feel worse"

SIR i have a chronic illness and was just laying face down in the gass...

but he obviously didn't notice cause he was too busy yelling at me for being late

(he knows too, it's not like he's unaware of me having health issues)

i really respect people that say "oh i wouldn't wish this on anyone else" about their chronic illness because I WOULD

(unfortunately i might have become a little bitter, but i'm working on it)

so my school decided cause there were too many absences last year to note it on report cards which is whatever BUT they are gonna make a special note about it if you miss over 12 hours (even if it's excused, which is btw less time than i spent at hospitals the last month) so no matter what happens basically you have to go which is dumb

first of all i think doctors notes should completely excuse it because then it wasn't just staying at home for fun... also my school is the only one doing it in this region so only we will have disadventages when applying to university and yk how little 12 hours are? shit happens, like so many things can happen that you have no control over

a teacher offered to try to find a solution for me which i am thankfull for, but also this isn't only about me:

"oh but it probably won't affect you" i don't care it's still unfair

everytime i feel something even just mildly wrong with my body for more than a few minutes i immediately panic thinking that this might be a new chronic symptom...

which sucks, because that makes my heart rate go up with then causes even more of my regular symptoms

how do i get rid of this anxiety about new symptoms?

i once asked a teacher to leave the room cause i was feeling like i was about to pass out so i wanted to lay down, he said yes, but after class came up to me telling me i should see a therapist because this seems like a serious mental problem.

SIR i am chronically ill...

i told him this is a physical condition and he said he doesn't believe me and doesn't wanna hear excuses

"you complain a lot" when i haven't even told them half my symptoms and mentioned not feeling well two days in a row

watching other people just live their life doing things you don't know if you'll ever be able to again...

why tf do people think i am joking when i say i am chronically ill and then continue making fun of it as if it's nothing apart from some silly little joke

this is my fucking life, it shouldn't be a joke to you, you shouldn't assume i am lying just cause you can't tell i'm chronically ill just by looking at me when i don't use my mobility aid

i need people to understand that when i say i can't do something it means that i can't do something, it is not up for discussion

they CANCELLED the cardiologist appointment i was waiting for for OVER HALF A YEAR!

i was waiting for over an hour just to have someone come up to me to tell me they have to cancel and that i should call in 3 weeks to make a new appointment

the medical system is fucking bullshit and neglectful

i'm so tired of feeling sick all the time

i don't want to be miserable... i wanna worry about things that other people my age worry about and not how to manage doctor appointments... i want a doctor to actually help... i wanna feel okay and not be scared of dying

my mom told me she doesn't know what to do anymore with all the different health issues i got... which is like fair enough, but i wonder if she realizes how i feel and how draining it is to actually go to all the different doctors appointments

i feel like i wasted all my healthy years with being sad

despite going to the doctor way too often there are still so many things wrong that i don't even know where to start

(the list of things i should probably get checked is loooong)

fighting the occasional urge to scream, because being chronically ill feels unfair and it really is all too much sometimes

i'm in too much pain to sleep and i have to get up in a few hours cause it's a busy day

i am lucky if i get to close my eyes for a few minutes and it sucks

someone told me that they would end themselves if they had even half of my health issues... idk what to do with that information...