Mobility Aid - Tumblr Posts

What possesses someone to just grab someone else’s mobility aid? There is literally no other situation I’ve been in where someone just saw something of mine and grabbed it AFTER asking what it was and me saying it’s a cane. Not just that, but then they went “damn, how old are you?” I FUCKING FRESHMAN IN HIGH SCHOOL. YOU KNOW THAT. WE ARE THE SAME AGE. Stop fucking grabbing my shit.

This is a threat

i understand why some ppl shy away from drawing scar’s character in his wheelchair, since he’s said he doesn’t mind and im sure people just don’t want to come across as offensive. however, as a physically disabled person the joy i get from seeing an artist represent disabled people’s bodies in their art is just !!!!!!! it’s so nice, and you have the creative liberty to come up with some amazing designs. all artists who draw scar in his wheelchair i am very in love with you

Wheel-talk

I'm flaring, severely. Everything hurts, the world is spinning, nausea is overwhelming, and I'm dizzy from blood loss, along with a myriad of other things: it's not fun. But I went to a museum with mum today, and instead of being stubborn and walking it on a cane, asked if they had a wheelchair that I could borrow.

It was amazing.

As embarrassing as it is to be a teen in a wheelchair (I got some stares and commentary from strangers), it was so freeing. Instead of hobbling around, leaning on things and trying not to faint, I could explore. Look at things. Read. Do wheelies (much to my mother's horror). Spin around and move at a speed I hadn't in years, as my body usually wouldn't let me, and I wasn't tied to leaning against walls and feeling sick.

and I had energy left over to complete chores.

I wouldn't be able to visit a museum, or for that matter.. anywhere, during a flare. But today? Because I had wheels? It was amazing.

It was nice having that freedom. So much so I talked to my mother and asked if we could discuss getting a wheelchair for when the pain is bad…

That went less well.

// slight ableist talk //

She doesn't want me relying on it to get around. She doesn't want me to rely on wheels to get around because she doesn't want me being bed bound, to lose muscle or something like that.

I understand where she's coming from, but… it's so frustrating when that was the first time I felt good in weeks… and having that option might actually give me more time to do things I enjoy.

but she doesn't want me being “that disabled”

a cane is bad enough in her eyes

(and don't get me started on how my father would react if he knew I'd used a wheelchair)

and I don't know what to do...

help?

Why do people think it's tragic when you use mobility aids? Can't you see that this is giving me freedom, that it's giving me my life back, that without it, I wouldn't be present? Let alone functional???

how can't you see this

it's giving me my life back.

Even when it's short term mobility aids like crutches for a broken bone, it's still giving freedom... it's allowing the bone to heal and for you to live as usual...

let alone people with chronic pain, paralysis, and long term injuries!

without them, I wouldn't be here!

how can't you see that is a good thing!?!? 😭😭

ah, welcome, calluses on my hands from using a wheelchair

Sending love to anyone whose disability has changed the way they look.. whether that be through surgery, medication, shifts in weight, using mobility aids, being limited in the ways you can exercise, having a colostomy bag added, glucose monitors, prosthetics, or anything else that's changed or added to your appearance

It's hard having your body change, especially if it's in a way you don't like at first — whether your disability has given you scars, stretch marks, spots, marks, or altered your appearance entirely: sending love, you've got this.

disabled system asks: 1-4, 10!

1. Is your disability invisible, visible or both?

Both: invisible in the way that there appears to be nothing outwardly wrong with us (as doctors kindly keep reminding me) but visible in the way that we use mobility aids almost all the time. We wear a sunflower lanyard in public, and use a mixture of a cane, crutches and a wheelchair depending on the day.

I wish to add, as someone who has looked able bodied, and disabled in various fonts.. people don’t treat disabled people better if they’re in a wheelchair or visibly ill, and some are arguably worse to young wheelchair users.

2. Do you use mobility aids? If so, what for?

We do! As said above. We have a mixture of issues (ranging from endometriosis to POTS to hEDS to fibromyalgia) that create.. well, a mixture of issues XD. We’ll use the wheelchair on bad pain and fatigue days and carry the crutches.. or, on better days, just use the crutches to take some pressure off our knees, and aid as balance. As cool as our cane looks (photos later), we stopped using it as it was giving us pretty severe hip pain on one side from the way we had to lean to get support from it (still my fav visually though).

3. Is there a specific alter/part/headmate who fronts to deal with pain? How do they manage it?

Yes, that would be me. I split when we were very young to deal with injury, particularly blood. As our chronic pain increased, so did the amount of time I spent fronting, until I slowly became our most common fronter. Sucks though, cuz that was never meant to be my job, I was supposed to stay sitting on the sidelines only appearing to deal with first aid and other protector things. Instead, I’m here, and somehow I make it everyone else’s problem.

My appearance as most common fronter got us outed as a system because I’m so drastically different from the common fronters of the time. {its a little more complicated than that but you get the idea}

I manage it with a combo of pain killers (including medicinal CBD, THC, and flower, pregabalin, panadol, ibuprofen, codeine and morphine amongst other things… happy to answer questions about any of them if you’re curious), dissociation, weaponised tears and sheer fucking willpower… I wish I could say sheer fucking will was still working, but it is not very well anymore. There’s only so much one can deal with, and our pain has been getting steadily worse for the past few years with very little support (most of our illnesses have no cure, only management). We’ve reached the point where our doctors and specialists aren’t sure what to do with us and are wondering if there’s something they have missed…but uh, our tests, bloods and results are coming back clean. Looking into that at the moment lol.

4. Do you experience pain variety based on who’s fronting?

Oh hell, do we ever. Certain members of the system *cough* Kyle *cough* have dreadful pain tolerances - I always know when one of them is cocon because our pain skyrockets into impossible levels, even if I’m trying to keep it under control. Certain other members of our sys have average pain tolerances, some age regress to cope, others just curl up in a ball and sob.. depends on the alter - and the cyclical nature of parts of our pain make it difficult to manage, and to recognise how each alter is affected. Plus, it’s hard to compare pain tolerances when each of us have no other/barely any frame of reference.

10. Do you decorate your aids?

YES. We use a combination of spray paint, cheap nail polish, stickers and in the case of the wheelchair, holders designed for prams and bikes (water bottle holder, clips, bells, reflective stripes etc).. aids start out super boring and for us, decorating them and making them prettier is the only way to make them tolerable. And political - if the government is going to make our life into a political ‘issue’, we will turn right back around and make them aware of our existence ;)

the pic doesn’t grasp it very well, but we painted the chair’s spokes rainbow (and they look super cool when we’re driving it)

Thanks to @disabled-systems for the game <33

reblog to tell a disabled person they're cute

II GOT MY FIRST CANE!!!

its been helping me so much already! im thinking of naming her Cherry Tempest (cherry just bc, tempest from mlp movie)

I'm a fervent "genuine cane user Azul" believer, just so you know. It just makes sense ? Guy who's got his legs cut from eight to two, who has bones and has to face gravity for the first time in his life, etc.

In the original Little Mermaid story, the mermaid's legs actually hurt her a lot whenever she took a step. Maybe it's not to that point for Azul, but he's explicitly said to have poor balance and stamina. A cane would just be the perfect mobility aid for him in all aspects.

Cane user Azul part 2, because I spent too much time counting this one :

Did you know that Azul is seen seated or using his cane in at least 1/3 (a third) of his cards, which is much more than Jade and Floyd, or even Leona and Silver who are known to sleep a whole lot. Dunno if the illustrators/devs gave him a cane on purpose and just don't make it official for ~reasons~ but I like to think it's at least a bit on purpose.

(Some Groovy spoilers ahead, be careful)

Mobility assistance

needed this so bad impostor syndrome is so bad rn. no spiral ableds don't dream about being able to use wheelchairs so they can be just a little less exhausted 😭😭

notes for my impostor syndrome:

• no, it's not painful to walk for abled-bodied people

• no, healthy people don't usually use every chance they get to lean against walls or sit down

• no, ableds don't dream about shower stool

• no, ableds don't celebrate days when they're not in pain. because usually they're not in pain

• no, ableds don't want to stop walking mid-way, lay down on the ground, curl up and cry and whine from pain

• no, ableds aren't exhausted by their own bodies 24/7

i fucking LOVE when people match their aids to their fashion style. punks adding spikes, decora adding stickers all over and sm more it's so awesome to see

PSA

Your mobility aid does NOT "ruin" your outfit

You look kickass !! Whack someone if they say otherwise !!

Hi, me and my fiance are trying to raise money for a mobility aid for them, as they have pots and other medical issues leading to issues walking and it would be so helpful, if anyone can spare anything it would be a lifesaver! Our cashapp is $hatimoonchaser

When it’s a bad pain day so you need your cane but it’s a BAD pain day so your hand hurts too much to hold your cane:

…Chat what do I do if my hand hurts too much to use my cane. Am I just fucked? Asking cuz I have to do go outside.

Mobility assistance

A general cane guide for writers and artists (from a cane user, writer, and artist!)

Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!

This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.

This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions, but you absolutely should continue to do your own research outside of this guide!

The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!

A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.

Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height will make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)

(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)

When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane and the bad leg and follow with the good leg!

Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.

In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.

Now we come to a very common mistake I see... Using fashion canes for medical use!

(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)

The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!

Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.

The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!

This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!

However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.

Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)

Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.

Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)

(my canes, for reference)

If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!

When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!

For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.

When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)

When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)

That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!

Happy disability pride month! Go forth and make more characters use canes!!!

Ha y'all a friend of mine has started a go fund me in order to get mobility support https://gofund.me/cc84f361