Probably Ehlers Danlos Syndrome - Tumblr Posts

consider-your-potatoes-mashed
2 years ago

Who the FUCK decided that insurance companies get to decide what’s medically necessary????????

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medically necessary chronic pain disabled disability actually disabled chronic illness physical disability hypermobility probably heds probably ehlers danlos syndrome insurance fuck insurance companies im in so much pain like walking is hard braces knee braces just let me have my custom braces I’ve tried everything else
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consider-your-potatoes-mashed
2 years ago

Hello! I'm also an autistic disabled person and I've thought about getting a cane but I haven't pulled the trigger on it yet. What made you decide? Is it an every day thing or a some days thing? Idk I'm just trying to gather info ig.

Hey! It took me a while to decide to do it honestly but realizing that I don’t need to push myself is a big part of it. I’ve always been a person who has pushed themself to do everything perfectly and I’d get really frustrated when I couldn’t and to be honest I’m still like that. It wasn’t until recently (got my first cane back in January) that I realized that having a mobility aid or aids would help me be able to do what I wanted how I wanted was a big part too.

Also I came to the realization that people don’t think about/dream about how much a cane or mobility aid would help them if they don’t need or would not benefit from it.

I was constantly worried about how other people would perceive me and as an Autistic person I struggle with knowing how people perceive me so I’m always self conscious of that but ive come to realize that the opinions of others don’t mean Jack shit compared to my comfort. Additionally, I was really scared to be rejected by my family and loved ones and to an extent I have faced some ableism from them (my mother especially) the way my mobility aids have helped me way out weigh that.

Basically just coming to terms with the fact that I can’t do everything the same way as everyone else, realizing that people who don’t need it don’t think about it, and that I should prioritize my health and comfort over my fears of how others perceive me. The comfort and safety of my body is the most important thing so I decided to finally listen to the part of me that has been begging for help.

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disabled chronic pain disability actually disabled chronic illness physical disability hypermobility pots pots syndrome autistic physically disabled actually autistic autistic experiences autism autistic community autistic adult potsie spoonie probably ehlers danlos syndrome probably heds my experience my experiences mobility mobility aid mobility aids babe with a mobility aid cane cane user crutch crutch user
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consider-your-potatoes-mashed
1 year ago

Sometimes I wonder why I’m exhausted all the time then I remember that I wake up a bajillion times every night feeling extremely nauseous and in so much pain that I can’t sleep for several hours

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disabled disability actually disabled chronic illness chronic pain physical disability hypermobility pots pots syndrome autistic health nausea probably ehlers danlos syndrome symptoms Insomnia、 pain
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